
¿Qué puede hacer por mí la Administración de Servicios Personalizada?
La Administración de Servicios es una opción. Si Usted opta por la Administración de Servicios , tendrá un equipo de Administración de Servicios que le ayudará a planificar su atención médica y coordinar los servicios de apoyo que Usted necesita.
Categories: Spanish, Special Healthcare Needs

1915(i) Medicaid Home and Community-Based Services
NC Medicaid’s new “1915(i) services” help you live more independently in your home and community, and give your caregivers the support they need. These services are for people with serious mental illness, severe substance use disorders, traumatic brain injuries or intellectual/developmental disabilities.
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

A Tip Sheet for Families Considering a Residential Program (expanded version)
Family members of children who have received residential services helped prepare this Family Tip Sheet so that you and others can benefit from their experience. Please use this Family Tip Sheet to help you (1) think about what is most important to you and to your child and (2) decide which questions you might want to ask when considering a residential program for your child.
Categories: Housing-Residential Options, Special Healthcare Needs

A Tip Sheet for Families Considering a Residential Program (short version)
Family members of children who have received residential services helped prepare this Family Tip Sheet so that you and others can benefit from their experience. Please use this Family Tip Sheet to help you (1) think about what is most important to you and to your child and (2) decide which questions you might want to ask when considering a residential program for your child.
Categories: Housing-Residential Options, Special Healthcare Needs

ABLE Account, Special Needs and Pooled Trust Comparison
Categories: Financial Planning, Special Healthcare Needs

ACCESS North Carolina: A Vacation and Travel Guide for People with Accessibility Needs
ACCESS North Carolina will be useful for planning vacations, weekend getaways, visits to local sites, school field trips, conferences, relocation, health and wellness activities or any type of trip. In addition to benefitting people with disabilities, the information in ACCESS North Carolina can also benefit people who are aging and parents with child and infant strollers
Categories: General, Inclusion, Special Healthcare Needs

Administering a Special Needs Trust: A Handbook for Trustees
Have you been named as trustee of a special needs trust? Have you created a special needs trust, and wonder what the job of trustee is actually like? Are you a trust beneficiary, trying to figure out what the trustee is permitted — and required — to do? The Special Needs Alliance is pleased to offer its free booklet on administering special needs trusts. In plain English, it can help you understand the choices and obligations.
Categories: Financial Planning, Special Healthcare Needs

Adult Disability Starter Kit
This kit will help you get ready for your Social Security disability interview or online application at: www.ssa.gov/apply. It contains: a checklist, optional worksheet and fact sheet.
Categories: Special Healthcare Needs

Asthma Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Special Healthcare Needs

Behavioral Health Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Special Healthcare Needs

CAP/C Application Checklist
In order to apply for the CAP/C Waiver, view this checklist for step-by-step instructions from Advocates for Medically Fragile Kids NC
Categories: Special Healthcare Needs

Care Notebook
A fillable tool for organizing a child's health care information.
Categories: Communication, General, Special Healthcare Needs

Care Notebook - Spanish
Una Herramienta para Organizar la Información de Salud de un Niño
Categories: Communication, General, Spanish, Special Healthcare Needs

Centro de Información de Salud de Familia a Familia (F2F) de Carolina del Norte (Spanish)
Además de ayudar a las familias a comprender el sistema de educación especial, también nos especializamos en ayudar a las familias a orientarse dentro del sistema de salud de Carolina del Norte.
Categories: Spanish, Special Healthcare Needs

CUESTIONARIO DE CAPACIDAD EN REFERENCIA A LA TUTELA (Guardianship Capacity Questionnaire)
Este cuestionario se creó para ayudar a todas las partes en un proceso por incapacidad a reunir información que será útil para el secretario del tribunal para determinar cuáles derechos, poderes y privilegios puede retener el demandado bajo tutela o tutela limitada, si es que puede retener algunos. El formulario también puede ayudar a las partes a determinar si un problema puede resolverse con alternativas a la tutela, como un representante del beneficiario para prestaciones sociales, un poder, o un fideicomiso para necesidades especiales, evitando así la necesidad de audiencia de incapacidad.
Categories: Guardianship and Alternatives, Spanish, Special Healthcare Needs

Diabetes Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Special Healthcare Needs

Exenciones de Medicaid de Carolina del Norte para Personas con Discapacidades
Las exenciones de Medicaid "eximen" ciertos requisitos federales de Medicaid, como los requisitos de ingresos familiares, para permitir que las personas con discapacidades calificadas tengan acceso a servicios y apoyos especializados que están cubiertos por Medicaid.
Categories: Medicaid and Medicaid Waivers, Spanish, Special Healthcare Needs

Fact Sheet: Appealing a Medicaid Denial (Chinese)
Categories: Special Healthcare Needs

Fact Sheet: Appealing a Medicaid Denial (English)
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Fact Sheet: Appealing a Medicaid Denial (Spanish)
Categories: Special Healthcare Needs

Fact Sheet: Early and Periodic Screening, Diagnosis and Treatment
Early and Periodic Screening, Diagnosis and Treatment (EPSDT) is the federal law (44 CFR Subpart B) that states that Medicaid must provide all medically necessary health care services to Medicaid-eligible children under the age of 21. Even if a service is not covered under the NC Medicaid State Plan, it can be covered for beneficiaries under 21 years of age if the service is listed in 1905(a) of the Social Security Act and if all EPSDT criteria are met.
Categories: Special Healthcare Needs

Fact Sheet: Seasonal Affective Disorder
Many people go through short periods when they feel sad or unlike their usual selves. Sometimes, these mood changes begin and end when the seasons change. Many people feel “down” or have the “winter blues” when the days get shorter in the fall and winter and feel better in the spring when longer daylight hours return.
Categories: Special Healthcare Needs

Fact Sheet: SSI vs SSDI
Supplemental Security Income (SSI) and Supplemental Security Disability Insurance (SSDI)
Categories: Special Healthcare Needs, Transition to Adulthood

Fact Sheet: Tailored Care Management (TCM)
Tailored Care Management (TCM) is a new care management model that began Dec. 1, 2022, for eligible NC Medicaid beneficiaries. With TCM, eligible beneficiaries have a single designated care manager, supported by a multidisciplinary team, to provide integrated care management to address the beneficiary’s whole-person health needs.
Categories: Special Healthcare Needs

Family Voices en Español!
The online magazine was developed in collaboration with family leaders from across the country and is available in Spanish and English. Learn from families like yours who are making a difference in their communities for children and youth with special health care needs. La revista en línea ha sido creada en colaboración con líderes familiares de todo el país y está disponible en español e inglés. Conozca otras familias como la suya quienes hacen la diferencia trabajando en sus comunidades con las familias de niños y jóvenes con necesidades especiales de la salud.
Categories: Spanish, Special Healthcare Needs

Family-to-Family (F2F) Health Information Center Fact Sheet (English)
In addition to helping families navigate the special education system, ECAC also specializes in helping families navigate health related systems in NC.
Categories: Special Healthcare Needs

Frequently Asked Questions (FAQs): SSA, SSI, and SSDI
Categories: Special Healthcare Needs

Frequently Asked Questions: Affordable Care Act Eligibility for DACA Recipients
People with Deferred Action for Childhood Arrivals (DACA) will be able to enroll in health coverage via Affordable Care Act marketplaces for the first time starting November 1, 2024. This FAQ answers key questions that DACA recipients may have about the enrollment process and addresses other concerns.
Categories: Special Healthcare Needs

Guardianship - Resource Guide from the Autism Society of North Carolina
This guide is intended to provide parents with practical information about guardianship to help them make an informed decision.
Categories: Guardianship and Alternatives, Special Healthcare Needs, Transition to Adulthood

Guardianship Capacity Questionnaire
The questionnaire is designed to help all parties in an incompetency proceeding gather information that will assist the Clerk of Court in determining what if any rights, powers and privileges the respondent can retain under guardianship or limited guardianship. The form may also assist the parties in determining whether alternatives to guardianship such as a representative payee for government benefits, a power of attorney, or a special needs trust might solve a problem thereby avoiding the need for incompetency hearing
Categories: Guardianship and Alternatives, Special Healthcare Needs

GUIA PARA LA FAMILIA: TRANSICIÓN DE UN MODELO PEDIÁTRICO DE SERVICIOS DE SALUD A UNO CENTRADO EN ADULTOS
Got Transition, su Grupo Asesor Nacional Familiar y la colaboración de padres líderes de habla hispana de Family Voices, han desarrollado un conjunto de herramientas para ayudar y guiar a las familias en la transición de sus jóvenes en los servicios de salud pediátricos a los de adulto. Esta guía es para familias e incluye recursos en español fáciles de usar para ayudar a jóvenes y familias a ser más independientes en su cuidado de su salud y el uso de los servicios de salud. Los recursos incluyen un programa de transición, preguntas para hacerle a su proveedor, lo que significa cumplir 18 años para su salud y más.
Categories: Spanish, Special Healthcare Needs, Transition to Adulthood

Has Your Child Lost Their Medicaid Benefits?
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Health Care Transition Readiness Assessment for Students
This health care transition readiness assessment is intended for students and their family/caregivers to compete as part of IEP transition planning meetings. If a student is unable to fill out this form, the student can complete it with the help of their family/caregiver
Categories: Special Healthcare Needs, Transition to Adulthood

Health Online: A Quarterly Disability and Health Newsletter (January 2023)
Brought to you by ECAC and NC's Family-to-Family (F2F) Health Information Center
Categories: Special Healthcare Needs

Health Online: A Quarterly Disability and Health Newsletter (July 2022)
A newsletter from ECAC, North Carolina's Family-to-Family (F2F) Health Information Center
Categories: Special Healthcare Needs

Health Online: A Quarterly Disability and Health Newsletter (October 2022)
A newsletter from ECAC, North Carolina's Family-to-Family (F2F) Health Information Center
Categories: Special Healthcare Needs

How NC Medicaid Eligibility Recertification Works
Medicaid recertification (renewal) is the way your information is reviewed to make sure you are still eligible for Medicaid health coverage. It is also called eligibility redetermination, renewal, ex-parté review or case review (all mean the same thing).
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Immigration Status & Eligibility for Medicaid Expansion
NC Medicaid now covers people ages 19 through 64 with higher incomes. You may be able to get health care coverage through Medicaid even if you did not qualify before. Medicaid pays for doctor visits, yearly check-ups, emergency care, dental care, mental health and more – at little or no cost to you.
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Inside Info on Residential Program from Youth Who Have Been There (expanded version)
Starting residential treatment can be hard, but knowing what to expect can help. Those of us who wrote “Your Life – Your Future” have all been where you are right now. Sometimes we felt lost and like we were thrown into a difficult situation. We put this information together to help you (1) understand what to expect and (2) to get what you need to take charge of your recovery. If you have difficulty getting answers to your questions, make sure you tell your family or guardians and your care coordinator.
Categories: Housing-Residential Options, Special Healthcare Needs

Inside Info on the Residential Program from Youth Who Have Been There
Starting residential treatment can be hard, so knowing what to expect can help. You might feel alone or angry or scared, and you may be concerned that no one will listen to you and your concerns. We have been right where you are now. We put this information together to help you benefit from our experience.
Categories: Housing-Residential Options, Special Healthcare Needs

Medical Condition/Clinical Diagnosis vs. Special Education Eligibility & Identification
Parents are often surprised to learn that their child’s medical condition or diagnosis, such as Autism, Dyslexia, Hearing Loss or muscle related disorders does not automatically qualify them for an Individualized Education Program (IEP). Understanding the differences between a medical diagnosis and an educational determination of eligibility for special education services can help families become better advocates for their children.
Categories: IEP, Special Education, Special Healthcare Needs

Mobile Outreach Response, Engagement & Stabilization (MORES)
Enhanced crisis response for children, adolescents and families. Behavioral health crises can be serious, but most do not require a visit to a hospital emergency department. Using other specialized crisis services may connect you more quickly to care and ongoing resources to support recovery
Categories: Special Healthcare Needs

Moving to a Medicaid Tailored Plan?
Call your Tailored Plan to make sure your doctors and specialists are in your network. Tailored Plans are a new kind of Medicaid health plan. If you got a welcome packet and new health plan ID card from Alliance, Partners, Trillium or Vaya, you have a Tailored Plan
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Navigating Chronic Conditions in Out-of-School Time
Resources and implementation tools
Categories: Special Healthcare Needs

NC Medicaid Expansion - Questions & Answers
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

NC Medicaid Managed Care County Playbook Reference Guide: Contacts for Beneficiaries
With NC Medicaid Managed Care comes the introduction of new points of contact for beneficiaries, such as the NC Medicaid Enrollment Broker and health plans
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

NC Medicaid State Plan Private Duty Nursing & School-Provided Nursing Hours
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

NC Medicaid Waivers for People with Disabilities
Medicaid waivers allow states to “waive” certain federal Medicaid rules, such as income requirements, so that individuals with qualifying disabilities can access specialized services and supports covered by Medicaid. These waivers are designed to help individuals receive care at home rather than in a hospital or institutional setting.
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

NC Medicaid: Private Duty Nursing
A Medicaid Home and Community-Based Service. Private Duty Nursing (PDN) is substantial, complex and continuous skilled nursing care that is authorized to supplement the care provided by a beneficiary’s trained, informal caregiver. Eligible beneficiaries must live in a private primary residence with at least one trained, informal caregiver who may provide direct care to the beneficiary during planned and unplanned absences of PDN staff. PDN services must be medically appropriate and medically necessary.
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

NC Plan of Care/Individualized Healtcare Plan Template
Categories: Special Healthcare Needs

Non-Emergency Medical Transportation (NEMT) Services - NC Medicaid Tailored Plan.
This service is for people with NC Medicaid to help them get to their medical and mental health appointments. This includes people on the Tailored Plan, a kind of Medicaid health plan. Accessible rides are also available
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Reconsideración de la Tutela - Rethinking Guardianship
Apoyo a la elección y la autodeterminación en Carolina del Norte: Una guía
Categories: Guardianship and Alternatives, Spanish, Special Healthcare Needs

Removal and Replacement of Guardian Packet - Disability Rights North Carolina
This packet provides a list of actions that are grounds for petitioning the Clerk for removal and replacement of the ward’s guardian
Categories: Special Healthcare Needs, Transition to Adulthood

Rethinking Guardianship
Supporting Choice and Self-Determination in North Carolina: A Guide
Categories: Guardianship and Alternatives, Special Healthcare Needs

Sample Goals for the Health Care Transition Readiness Assessment for Students with an IEP
If a student has responded “No” or “I want to learn” to any of the items on the Health Care Transition Readiness Assessment, use the following sample goals as a guide when creating goals in the IEP transition plan.
Categories: Special Healthcare Needs, Transition to Adulthood

Schools and Medicaid - Information and Answers for Families
Categories: Medicaid and Medicaid Waivers, Special Education, Special Healthcare Needs

Seguridad de Ingreso Suplementario vs Seguro por Incapacidad del Seguro Social
Categories: Spanish, Special Healthcare Needs

Seizure Tiered Document – North Carolina Chronic Condition Prevention and Management in Schools
Categories: Special Healthcare Needs

Servicios de Medicaid 1915(i) en el hogar y comunidad
El nuevo plan de “servicios 1915(i)” de NC Medicaid te ayuda a llevar una vida más independiente en tu hogar y comunidad, y le brinda el apoyo necesario a tus cuidadores. Son servicios para personas con enfermedades mentales graves, trastorno grave por uso de sustancias, lesiones cerebrales traumáticas o discapacidad intelectual o del desarrollo.
Categories: Spanish, Special Healthcare Needs

Severe Allergy Tiered Document – North Carolina Chronic Condition Prevention and Management in Schools
Categories: Special Healthcare Needs

Social Security Administration: Overpayments
Information from the Social Security Administration about overpayments and what you should do if you receive an overpayment notice.
Categories: Special Healthcare Needs

Special Needs Trust
A Special Needs Trust is a type of trust. It is for someone with a disability. This type of trust gives people with disabilities income. It lets them have this income while keeping their needs-based public benefits. (This may be Supplemental Security Income (SSI) and/or Medicaid benefits.)
Categories: Financial Planning, Special Healthcare Needs


Transporte gratuito de ida y vuelta paratus citas médicas cubiertas por Medicaid
Los servicios de transporte médico que no es de emergencia (NEMT por sus siglas en inglés) están cubiertos por tu Tailored Plan (Plan personalizado) de NC Medicaid.
Categories: Spanish, Special Healthcare Needs

Trastorno Afectivo Estacional
Muchas personas pasan por períodos cortos en los que se sienten tristes o un poco diferentes de lo normal. A veces, estos cambios en el estado de ánimo comienzan y terminan cuando cambian las estaciones. Muchas personas se sienten “decaídas” cuando los días se acortan en el otoño y el invierno (que también se conoce como “tristeza invernal”) y se sienten mejor en la primavera, cuando vuelve a haber más horas de luz natural.
Categories: Spanish, Special Healthcare Needs

Turning Rights Into Reality: How Guardianship and Alternatives Impact the Autonomy of People with Intellectual and Developmental Disabilities
This report provides an in-depth examination of the unique challenges faced by individuals with intellectual and developmental disabilities (ID/DD), and how the use of alternatives such as supported decision-making may enable some individuals with ID/DD to exercise greater self-determination, participate more fully in their communities, and achieve greater economic self-sufficiency.
Categories: Guardianship and Alternatives, Special Healthcare Needs, Transition to Adulthood

Understanding Medicaid Fair Hearings
This factsheet explains the federal rules for Medicaid fair hearings (also referred to as an “appeal”) related to eligibility determinations that apply to all states and identifies areas where state practices may vary.
Categories: Medicaid and Medicaid Waivers, Special Healthcare Needs

Understanding the Spectrum - a Comic Strip Explanation
Categories: Advocacy, Autism, Special Healthcare Needs

What Can Tailored Care Management Do For Me?
Care Management is a choice. If you choose care management, you will have a care management team to help you plan medical care and coordinate supports and services in your life.
Categories: Special Healthcare Needs

Your Student Has a Bleeding Disorder...Now What?
Categories: Special Healthcare Needs