22q Deletion Velocardiofacial Syndrome
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Achondroplasia at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Aicardi Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Angelman Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Asthma Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
Autism Spectrum Disorder at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Behavioral Health Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
Care Notebook
A fillable tool for organizing a child's health care information.
Categories: Communication, Disability and Health Condition Specific Information, General
Care Notebook - Spanish
Una Herramienta para Organizar la Información de Salud de un Niño
Categories: Communication, Disability and Health Condition Specific Information, General, Spanish
CHARGE Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Congenital Heart Defects At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Cornelia de Lange Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Cystic Fibrosis At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Diabetes Tiered Document - North Carolina Chronic Condition Prevention and Management in Schools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
Down Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Ehlers-Danlos Syndrome (EDS) at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Fact Sheet: Seasonal Affective Disorder
Many people go through short periods when they feel sad or unlike their usual selves. Sometimes, these mood changes begin and end when the seasons change. Many people feel “down” or have the “winter blues” when the days get shorter in the fall and winter and feel better in the spring when longer daylight hours return.
Categories: Disability and Health Condition Specific Information
Family-to-Family (F2F) Health Information Center Fact Sheet (English)
In addition to helping families navigate the special education system, ECAC also specializes in helping families navigate health related systems in NC.
Categories: Disability and Health Condition Specific Information, Guardianship and Alternatives, Health Care in Schools, Housing/Independent Living, Medicaid and Medicaid Waivers, Residential Treatment - Crisis Intervention Services, Special Needs Financial Planning and Financial Resources, Social and Recreation, SSI and SSDI, Transition to Adulthood
Fetal Alcohol Spectrum Disorders (FASDs) and Fetal Alcohol
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Fragile x At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Galactosemia at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Kabuki Syndrome (KS) At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Klinefelter Syndrome at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Marfan Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
MCAD At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
MECP2 Duplication at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Medical Condition/Clinical Diagnosis vs. Special Education Eligibility & Identification
Parents are often surprised to learn that their child’s medical condition or diagnosis, such as Autism, Dyslexia, Hearing Loss or muscle related disorders does not automatically qualify them for an Individualized Education Program (IEP). Understanding the differences between a medical diagnosis and an educational determination of eligibility for special education services can help families become better advocates for their children.
Categories: Disability and Health Condition Specific Information, IEP, Special Education
Mitochondrial Disorders at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
MPS Disorders (Hunter/Hurler/Morquio) at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Navigating Chronic Conditions in Out-of-School Time
Resources and implementation tools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
NC Plan of Care/Individualized Healtcare Plan Template
Categories: Disability and Health Condition Specific Information
Neurofibromatosis 1 -At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Noonan Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
PKU At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Prader-Willi Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Rett/Rett Variant Syndrome (MECP2- Related Disorders)
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Rubinstein-Taybi Syndrome (RTS) at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Russell-Silver Syndrome at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Seizure Tiered Document – North Carolina Chronic Condition Prevention and Management in Schools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
Severe Allergy Tiered Document – North Carolina Chronic Condition Prevention and Management in Schools
Categories: Disability and Health Condition Specific Information, Health Care in Schools
Sickle Cell Disease At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Smith-Magenis syndrome at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Sotos Syndrome at a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Trastorno Afectivo Estacional (Seasonal Affective Disorder)
Muchas personas pasan por períodos cortos en los que se sienten tristes o un poco diferentes de lo normal. A veces, estos cambios en el estado de ánimo comienzan y terminan cuando cambian las estaciones. Muchas personas se sienten “decaídas” cuando los días se acortan en el otoño y el invierno (que también se conoce como “tristeza invernal”) y se sienten mejor en la primavera, cuando vuelve a haber más horas de luz natural.
Categories: Disability and Health Condition Specific Information, Spanish
Tuberous Sclerosis At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Turner Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Understanding the Spectrum - a Comic Strip Explanation
Categories: Advocacy, Autism, Disability and Health Condition Specific Information
Urea Cycle Disorder (UCD) At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
VLCAD At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Williams Syndrome At a Glance
Genetic Education Materials for School Success (GEMSS) provides a family-friendly starting point to help family members learn more about genetic conditions and offers ideas to encourage inclusion and participation in the classroom. GEMSS shares condition-specific information and resources for multiple audiences, including families, professionals, healthcare providers, and schools. Contributors to GEMSS come from clinical, public health, advocacy, and academic settings. All content has been vetted by clinical and family experts.
Categories: Disability and Health Condition Specific Information
Your Student Has a Bleeding Disorder...Now What?
Categories: Disability and Health Condition Specific Information, Health Care in Schools
